Archive of ‘Uncategorized’ category

Sweet Potato Love

Creating the yummy meal

Did some double bib action

Before the excitement 

So I am doing blog entries a little out of order because I need Todd’s assistance with the Knoebel’s blog. I also need to blog about Halloween and the PA Putmans weekend. But….I just couldn’t wait to post the pix and video of Evan enjoying his first solid food-sweet potatoes! He has had rice cereal a few times but just wasn’t loving it and I thought I might try a veggie and see if that suits his fancy. The pediatrician said any time after 5 months would be fine to start fruits and veggies. I have bananas getting ripe too and they will be our second foray into solids. Needless to say there is no question Evan is my son, bc he loves to eat!! He gobbled down every bite and only gagged a tiny bit on the first bite when I think he was just getting used to the texture.  He kept grabbing at the spoon and opening his mouth for more. It was so easy to make too, I hope all the baby foods go that well!! Enjoy the pictures and video! I sure do dislike hearing my deep voice on video…sigh….oh well no one is listening to me anyway! 🙂

After the excitement 🙂

Like father, like son

Just hanging out after dinner (in his special outfit from Shirley!)

Loves his feet!

Almost 5 Months of An Amazing Boy

We can see that the baby is as much an instrument of nourishment for us as we are for him.
Polly Berrien Berends

So I missed the 4 month post, even though I had the best of intentions! Evan will be 5 months in a week, so at least I am not a whole month behind! Anyway, he is doing so well. The last few days, I just keep hearing myself saying what a good boy he is. We are so lucky and blessed by his temperament.  I remember a few months ago thinking he was going to be a fussy baby because of his little temper and his fussy hours at night. And a few very dear friends and family members kept saying, “Just wait, he will all of a sudden even out and you will forget when he was fussy….” Well they were right! I can’t say I totally forget when he was fussy…:) BUT he is really happy for the most part and if he isn’t, it is a quick fix most of the time.
He is drinking more ounces which I think is leading to a fuller belly which makes for a happier baby and longer nights of sleep! Last night he slept for……………..drum roll please………………..NINE hours! Then I fed him 4 oz and he slept for 3 more! We were about 15 min late for our MOPS meeting!  Never expected that.
He is rolling over both ways, and holding his head up very well. He is still not a huge fan of being on his belly but every day it seems he lasts longer, especially when entertained. A few times he has done this little scooch thing where he pulls his knees in to his chest and tries to move forward but then gives up. I am pretty sure we are in for crawling any day now. We need to babyproof ASAP! His days are filled with raspberries, talking to his animals on his playmat, and bouncing like crazy in his bouncer. We have a playdate with Genna and Andrew a few times a month and we see Gran often as well.  It is just so much more fun to share all the fun things he is doing with others.
We had a fun weekend recently with Genna and Andrew as overnight guests while the Daddies went camping. Genna and I had a blast, but we were exhausted by the end of the weekend with the two boys keeping us busy. We had plenty of adventures- including a broken bowl of applesauce all over, Zoey getting loose, getting a little lost on the way to my godmother’s house due to us gabbing, Chinese food delivery at 10 pm, and the list goes on. But we were happy to have our spouses back to help out. I really just don’t know how single parents do it. I say that all the time too.
At Evan’s 4 month check up that was really 4.5 months- His weight was 15 lbs 10 oz and his length 24 and 3/4 inches. He is 50th percentile for all his stats. The doctor said, “He is the most active 4 month old I have ever seen,” Uh oh is what I said back to her…..We are in for it! But we have known that all along since he started holding his head up the first week home. We had to take him to the urologist for a little adhesion but besides that he is really healthy. Next week is his CHOP cardiologist checkup. Praying his heart issues have resolved already but it could take a little longer and that is okay too. As long as he is doing well, we are happy.  I clipped his nails today and cut too far down on his right thumb and it bled for a loooong time. It scared me of course and I cried a little, but he was barely bothered by it! I’m sure it won’t be the last time I cry over a parenting mishap. Hopefully the laughs and smiles will outnumber the tears.
Next on our agenda is our first mini family vacation with just Todd, Evan, and I. We are going to Knoebels Amusement Park  for the first of many trips. We plan to go yearly to honor my father’s memory and make new ones with our son. I know this visit might be tough in some ways but I am still looking forward to it very much. Todd has planned some side trips and a little surprise agenda for us, which he knows I  love! We are also going to see one of Todd’s dearest friends on the way home and meet his second daughter for the first time. I will be sure to post pictures of our trip soon.  Thank you again for reading, I love reading your comments. Here are some recent pictures:

I’m 4.5 months old! 
Sucking his thumb

Playing with his best pal, Andrew after his Blessing Ceremony

Rolling around with Cole while the Mommies watch football

Raspberries rule.

Just hanging out like a 4 month old does.

“I love to bounce!”

Thoughts During Contractions

So yes, you read correctly, it is 11:30 pm on 5-26 and I am blogging about contractions. 🙂 So they started today while I was getting ready for my mom to pick me up. We went to Philadelphia to go to her three pre-surgery appointments. She is having back surgery on 6-10. Her appointments were all in or around Pennsylvania Hospital, where we are having Baby P. So I figured hey why not? I can keep my mom company and if I do happen to go into labor, I will be right there! 🙂 Well obviously that did not happen but I did get progressively uncomfortable as the day went on. I will spare you the gory details of all the prelabor things that are going on (unless you are pregnant or are curious, you can ask me off blog) but suffice it to say, I had some waves of pains but they were sporadic and very far apart. If you know me, you know I very rarely will pass up an opportunity to eat out. Todd was planning to meet us for lunch after my mom’s appointments and because I was so uncomfortable I asked if we could head home and just get take out. Nuff said. 🙂
So we picked Todd up, took him home with us (he got out a tiny bit early) and enjoyed a take out meal from our fave local Italian joint. After my mom left I started to get the contractions again but I was really tired so we both decided to lie down for a nap. I woke up about an hour later feeling energized (which I know am realizing is also a sign of pre-labor) and I started putzing around the house. Suddenly I was hit with three contractions in the span of about 45 min while Todd was still napping. I knew this might be starting to be something substantial but I didn’t want to get too excited. So I tried to ignore them. Todd woke up and said he would start timing them using this computer program.
That brings us to now, and we have been timing them for over 3 hours. It’s so funny because for weeks I have been asking people and reading online trying to figure out what contractions feel like so that I can distinguish between the braxton hicks ones I have been having and real ones.  NOW I know why they say you will know when they happen. !!!! Man they are doozies. I can feel them pretty much everywhere and including my abdomen and they wrap all the way around my back and shoot down my legs. They keep getting close together and then spreading apart again. All the cliches have been true, I got really hungry so I ate random things over the last 4 hours and I have been cleaning like crazy! I didn’t know nesting would happen DURING labor!! 🙂  It’s hard to sit or lie down bc of discomfort and when I do sit, I feel like they are getting further apart. I’m standing and typing this.
This is what a random pair Todd and I are. He just made two bottles of sarsaparilla and I ate blueberry waffles with peanut butter while having contractions.  Zoey is just curled up sleeping through all of this. 🙂 I’m going to hold off on posting this because I don’t want to get everyone excited if this doesn’t add up to a hospital visit.
Again thank you for all the nice messages I have been receiving lately online, by phone call, and text. I really feel cared about (and I know Baby P does too).
Both Debbie and Todd predicted the baby would arrive tomorrow 5-27……
Here’s hoping the next time I blog will be a few weeks from now with pictures of our little guy. Maybe I truly was just a day or two away from change last night……………

What is Williams Syndrome?

This is taken directly from a wonderful website: please keep in mind- as Evan’s genetic counselor told us the day he was diagnosed-
“Every child will tell a different story, let Evan tell you his story.”

What is Williams Syndrome?

Williams syndrome is a genetic condition that is present at birth and can affect anyone.  It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities.  These occur side by side with striking verbal abilities, highly social personalities and an affinity for music.

WS affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. It is known to occur equally in both males and females and in every culture.
Unlike disorders that can make connecting with your child difficult, children with WS tend to be social, friendly and endearing.  Parents often say the joy and perspective a child with WS brings into their lives had been unimaginable.

But there are major struggles as well.  Many babies have life-threatening cardiovascular problems.  Children with WS need costly and ongoing medical care, and early interventions (such as speech or occupational therapy) that may not be covered by insurance or state funding.  As they grow, they struggle with things like spatial relations, numbers and abstract reasoning, which can make daily tasks a challenge. And as adults, most people with WS need supportive housing to live to their fullest potential.  Many adults with WS contribute to their communities as volunteers or paid employees, for example working at senior homes and libraries or as store greeters or veterinary aides.

Just as important are opportunities for social interaction. As people with WS mature – beyond the structure of school and family activities – they often experience intense isolation which can lead to depression.  They are extremely sociable and experience the normal need to connect with others; however people with Williams syndrome often don’t process nuanced social cues and this makes it difficult to form lasting relationships.
Common features of Williams syndrome include:
Characteristic facial appearance 
Most young children with Williams syndrome are described as having similar facial features. These features include a small upturned nose, long philtrum (upper lip length), wide mouth, full lips, small chin, and puffiness around the eyes. Blue and green-eyed children with Williams syndrome can have a prominent “starburst” or white lacy pattern on their iris. Facial features become more apparent with age.
Heart and blood vessel problems 
The majority of individuals with Williams syndrome have some type of heart or blood vessel problem. Typically, there is narrowing in the aorta (producing supravalvular aortic stenos is SVAS), or narrowing in the pulmonary arteries. There is a broad range in the degree of narrowing, ranging from trivial to severe (requiring surgical correction of the defect). Since there is an increased risk for development of blood vessel narrowing or high blood pressure over time, periodic monitoring of cardiac status is necessary.
Hypercalcemia (elevated blood calcium levels) 
Some young children with Williams syndrome have elevations in their blood calcium level. The true frequency and cause of this problem is unknown. When hypercalcemia is present, it can cause extreme irritability or “colic-like” symptoms. Occasionally, dietary or medical treatment is needed. In most cases, the problem resolves on its own during childhood, but lifelong abnormality in calcium or Vitamin D metabolism may exist and should be monitored.
Low birth-weight / slow weight gain 
Most children with Williams syndrome have a slightly lower birth-weight than their brothers or sisters. Slow weight gain, especially during the first several years of life, is also a common problem and many children are diagnosed as “failure to thrive”. Adult stature is slightly smaller than average.
Feeding problems 
Many infants and young children have feeding problems. These problems have been linked to low muscle tone, severe gag reflex, poor suck/swallow, tactile defensiveness etc. Feeding difficulties tend to resolve as the children get older.
Irritability (colic during infancy) 
Many infants with Williams syndrome have an extended period of colic or irritability. This typically lasts from 4 to 10 months of age, then resolves. It is sometimes attributed to hypercalcemia. Abnormal sleep patterns with delayed acquisition of sleeping through the night may be associated with the colic.
Dental abnormalities 
Slightly small, widely spaced teeth are common in children with Williams syndrome. They also may have a variety of abnormalities of occlusion (bite), tooth shape or appearance. Most of these dental changes are readily amenable to orthodontic correction.
Kidney abnormalities 
There is a slightly increased frequency of problems with kidney structure and/or function.
Inguinal (groin) and umbilical hernias are more common in Williams syndrome than in the general population.
Hyperacusis (sensitive hearing) 
Children with Williams syndrome often have more sensitive hearing than other children; Certain frequencies or noise levels can be painful an/or startling to the individual. This condition often improves with age.
Musculoskeletal problems 
Young children with Williams syndrome often have low muscle tone and joint laxity. As the children get older, joint stiffness (contractures) may develop. Physical therapy is very helpful in improving muscle tone, strength and joint range of motion.
Overly friendly (excessively social) personality 
Individuals with Williams syndrome have a very endearing personality. They have a unique strength in their expressive language skills, and are extremely polite. They are typically unafraid of strangers and show a greater interest in contact with adults than with their peers.
Developmental delay, learning disabilities and attention deficit disorder
Most people with Williams syndrome mild to severe learning disabilities and cognitive challenges. Young children with Williams syndrome often experience developmental delays.  Milestones such as walking, talking and toilet training are often achieved somewhat later than is considered normal. Distractibility is a common problem in mid-childhood, which can improve as the children get older.
Older children and adults with Williams syndrome often demonstrate intellectual “strengths and weaknesses.” There are some intellectual areas (such as speech, long term memory, and social skills) in which performance is quite strong, while other intellectual areas (such as fine motor and spatial relations) show significant weakness.

Helpful Links

Links that I found helpful for parenting a child with Williams Syndrome and also some just for some good reading and introspection: – This is the go-to for all factual information about WS. Recommended by docs, parents, etc – This is fantastic blog written by a mom who just happens to be a brilliant biology teacher. I could learn a lot from her! – The author of this blog, Glennon, has been a literal God send to me as a mother. She manages to make me feel like she knows me somehow  Not only is she a thoughtful, highly intelligent woman, she is HYSTERICAL. and self deprecating which is awfully helpful.–  This blog is written by the lovely Ashley, whom I have never met, but I hope to in the future! She has a GORGEOUS family, and her son and Evan could seriously be brothers- they look so much alike.  She writes from the heart and I feel like I am “home” reading her entries. And….she loves Big Brother and feels good about working outside of the home. Two things I am not scared to admit about myself. 🙂

About Erin

NYE 2012

Updated August 2013

Here is a good entry that tells a lot about me.

I’m Erin, the author of this here little blog. I started this blog with the intent of keeping track of my pregnancy. Then I decided to keep up with it as  Evan began to grow so we would have a place to keep all our memories.
But the blog turned into something more for me.  It turned into more than just a place to share. It turned into a place to process. A place to put things out there that I didn’t even realize needed “putting out there.” Since becoming a mother, I have relied much on those who have gone before me to help me along this rocky, beautiful path.  I can only pray that our stories, obstacles, triumphs, and laughs may shed some light into someone else’s darkness one day.

I feel a little silly doing an About Me section but I know that it is on the first things I read on a new blog so here goes: 

Evan’s birthday May 2013

  •  I’m 35 and I don’t really have any issues with it. I love birthdays, probably a little too much for someone my age. 
  • California-one of the most beautiful sights I have ever seen.
  •  I currently am a stay at home mom with my son, Evan.  I am going back to work soon and have conflicting feelings about it.  I taught for 11 years before going out on maternity leave with Evan.  I LOVE teaching. Being a teacher is part of who I am.  But of course, I am worried about how Evan will do with new caregivers.  (Um, let’s be honest, he’ll be fine. It’s me you have to worry about.)

  • I’m clumsy and have extremely weak ankles. I have been known to twist my ankle standing still. Not kidding. And in case you were wondering? Not fun.
  • My husband and I met on Match.Com.  I recall a day when you couldn’t admit that. But now it is not a big deal at all. Thank goodness we are over that stigma, people!
  • I’m a wedding singer. Let me know if you need an event singer (wedding, funeral, etc), I love doing it.
  • I think that counseling/therapy is a beautiful and necessary thing. I have said many times that I believe you should be able to give gift certificates for sessions. Who wouldn’t benefit from talking to someone about your life who is completely unbiased?? I wish there wasn’t such a stigma with it. There is no stigma to using the gym to improve your physical health, so why should there be one that involves improving your mental well being?
  •  I admit I have an issue with clutter. I make organized piles. I am really good at organizing these piles. 
  • If you get a second, learn all about Williams Syndrome and teach someone else about it too.  It’s really the only way to get awareness out there and continue to get more programming and supports available to individuals and their families. 
    Doing what I love.

Me and the Bug

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