Archive of ‘Dr. Mervis’ category

Monday Musings

Our Christmas Tree 🙂

I was going to be secretive about the pictures we took at the Christmas tree farm this weekend because I had grandiose plans about using some of them for the Christmas card and/or gifts. Alas, the Christmas card creation went in a different direction- so no need to hide them! Don’t you love Evan’s cute holiday sweater and Todd’s sexy professor cardigan? I love them. I think he got a little offended the first time I told him that, but I clarified that I truly meant it as a huge compliment. Can’t professors be sexy? 🙂

Up close and personal with a very docile donkey
In his glory with a large wheel

Anyway, so I just wanted to share some exciting things Evan has been up to in the past week or so, and to mention that the big Louisville trip to see the WS guru Dr. Mervis is imminent.  I probably will not blog again until we return and I will share about our trip.  It will not all be research, we have a bunch of sight seeing type things to check out too.  Todd and I had a chat about the trip yesterday. He grounded me a bit by reminding me that the research team needs this experience with Evan as much as we do, if not more.  Even if we do not get the information we are hoping for- we will have helped a larger cause- and hopefully parents of children who are diagnosed with Williams Syndrome 5, 10, 20 years from now will have a larger knowledge base to work from. At the very least, Evan will get to play with some new toys, we will eat some Kentucky BBQ and learn what it is like to travel 8+ hours in the car with 4 adults and a toddler. 🙂

Perusing The Night Before Christmas

This past week Evan surprised me by rolling his hands independently during “The Wheels on the Bus.” I was so caught off guard. I was feeding him in the high chair and absentmindedly singing and all of a sudden he started “rolling” his hands. I was so excited. Then I tested it out and sang “Pattycake” and he did the same thing during the roll it part.  It is so amazing how much babies take in when you don’t realize it.  I have always said his receptive vocabulary is stronger than his expressive and that he watches us and soaks it all in. This movement was an example of that observation because I wasn’t even doing the motions when he did it.  Little developments like that keep me motivated to keep on keeping on. 🙂 He is also starting to say “baby” as his main word. I would say that is his first official word- considering that “whee” was more repeating and he will say baby spontaneously.  We have used a few flash cards with him and when you show him the baby one, he smiles immediately and makes some sort of sound with two b’s, and most of the time it sounds very much like the word “baby.” He is definitely going through another developmental growth spurt because he is taking forever to fall asleep again and his energy level is through the roof.

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 Hopefully the next time I write, I will have interesting news to share from our Kentucky experience. Wish us luck in our travels!  Thank you again for reading, and for all your support of this blog.  It means a lot that you take time out of your day to read about our family.

Fun with cutouts, teaching him early.

Counting from Ung to Ung

We thought Evan might have had his first ear infection, so we took him to the new pediatrician’s office today.  It was a very nice coincidence that Todd took off today so we were able to go together.  Luckily the nurse practitioner cleared Evan of an ear infection, and she was able to clear out a little of the wax without making him bleed.  Apparently he just has a run of the mill virus of some sort, and it just has to run its course.  We are praying our little hearts out that he will be well when we leave for the Dr. Mervis research study trip.  It will be difficult to get accurate results when he is not himself for the experience.
This morning he was having some Daddy time in the recliner and Todd was saying the alphabet with him and Evan continuously would repeat short sounds back to him like he was saying his own version of the alphabet. He sometimes would say bee, or whee, or ma, but for the most part he said ung. And then in the doctor’s office while we waited to be seen he counted from 1-10 and here is a little snippet.

PS, I think our bug looks big in this video, too! We had him weighed and he is up to 20.4 lbs!! Go Evan!
Oh here is another video I keep meaning to post. Evan discovered that if he opened and closed the mailbox on the schoolhouse a certain amount of times, it would say “You have letters!” and then play the ABC’s song. I noticed one day that he would sit and look at me patiently like he was waiting for something. I realized then that he wanted me to sing along. So it became a little game for him for a few days. You have to listen to us sing the alphabet three times though, sorry. 🙂 Enjoy!

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